We're just a regular family dealing with some extraordinary circumstances! Bryan & I married in June of 1999. We welcomed Zachary in September 2007 and Eli in October 2010. Eli was diagnosed with multiple heart defects when he was only 10 weeks old. We've been blessed in so many ways and despite the struggles we're a very happy family. We chose the title "With Every Little Beat..." because we've come to realize what a gift every moment truly is.
Wednesday, May 1, 2013
Day 14, Post Op Fontan (May 1)
Just another day in paradise....
incision has a "lump" that is red. Sara & Dr. Abarbanell didn't
like the way it looked so they were going to have Dr. Abraham look at it
for possible drainage and irrigation. After they left and before he
got here, we had PT. Eli walked quite a bit and got a wagon ride. When
it was over we came back in the room and were persuading him to use a
bench to climb up onto the couch. In the process of holding his oxygen
tank, telemetry box, other monitors and helping him keep his balance,
his chest tube got pulled out. It didn't seem to hurt him but we had to
move quickly to get it covered because it is an opening into his lung
cavity and could possibly collapse his lung if not taken care of. Sara
was still on the floor and she was in the room in no time. She got it covered
and they'll do an xray in the morning to determine if he needs another
one placed or if he can handle the fluid on his own.
Dr. Abraham came by to look at the incision. He thinks it's infected
in that area but doesn't think it's very deep. He debated just doing it
at bedside, but because it's in the area of the pacer wires he wants to
take Eli to the OR in the morning so he can clean it out really well.
That way if it turns out to be deeper than he thinks it is, he can deal
with it properly. Also, the chest xray will be done prior to going to
the OR so they'll know if they need to place a new chest tube or not.
Eli will not have anything to eat or drink after 11pm. He's scheduled
for the OR at 7am. It should only take about 5 minutes but Dr. Abraham
wants to be prepared in case he needs to do more. If they place a chest
tube it will be another 15 minutes or so. Then he'll go to recovery
and back up here to his room.
In addition to those issues, his PICC line is being troublesome. There are times when it won't flush at all and it varies from lumen to lumen (he has a double lumen). We were worried that it was clotting off, but that would be a little surprising since he's only had it for a week. Not unheard of, but a little surprising. Throughout the day we've decided it's just positional. That means the end of it where the fluid/medicine/flush would exit is next to the wall of a vessel or next to a valve that closes it off. Nothing majorly wrong with that but a pain in the keister (yes, I looked up the correct spelling). It could potentially be an issue when we have him home and are trying to administer his antibiotics. We'll worry later.
that's been our day. That and the occasional low grade fever they are
accounting to the infection along his incision. We'll let you know in
the morning how he's doing! Sorry this post doesn't have much more info, but it's only 4:30 and it's been a long day. We've been here for two weeks now and are about to hand our son over to be put to sleep for the fourth time. I'm upset that his chest tube came out, upset that it came out on my watch, and sad that he just flat out doesn't feel well.
Brighter news, Bryan's back at the hospital with us and Eli was glad to see his Daddy. He even smiled at Bryan an couple times. It was so precious to see that.
Please pray for Eli as he has another procedure (or two!) in the morning!