Friday, January 4, 2013

Update and an Invitation

Happy New Year!  We had a quiet holiday.  We're not big partiers anyway but were just glad to all be together.  Both boys had colds over Christmas.  Zachary got over his easily but Eli's lingered throughout the new year.  In fact he developed an ugly barky cough and we had to get him into the doctor to make sure he wasn't developing a respiratory infection.  Fortunately, Dr. Amy discovered his throat was red and covered in white patches.  We think his lungs are clear.  He's tricky because he's had pneumonia before that we couldn't hear but just happened to find on x-ray.  He's on an antibiotic now and hopefully is better in a few days. 

The new year always bring about excitement for what's to come.  I don't know if I'm as excited for 2013 as I was for 2012.  We were definitely ready for 2011 to end since it was such a trying year for us:  Eli was unexpectedly diagnosed, had his first (and hopefully ONLY) helicopter ride, two heart surgeries, two feeding tube surgeries, a heart cath, two other hospitalizations (pneumonia and stomach virus), two EGDs, a colonoscopy, multiple echos, blood draws, therapy appointments, etc.  We were ready for that year to end so we could start as fresh as we could.  2012 was good for us.  It was calm.  We didn't have any major unexpected situations.  As we start 2013 I feel some apprehension for the upcoming year.  We know Eli will have his third open heart surgery months before he sees his third birthday.  We're smarter about our situation now and have done more research about it.  The good side of that is we won't have as many surprises.  The flip side is with the research we hear more of the negative outcomes.  Of course we're hoping and expecting the best, but we wouldn't be normal if we didn't admit to some fears. 

Something I've wanted to do with this blog is to get more feedback from those of you reading along.  Your comments mean so much to us.  Even through 2012 when we didn't have any major issues, it was so nice to feel your support and concern.  Thank you to everyone who takes the time to read this.  Along those lines, I've wondered if there's anything you'd like me to write about?  Do you have any questions for us?  Feel free to ask anything, I'm pretty hard to offend!  To get your question or comment to us use the comment section below, use Facebook, or email me at  Please let us know what you'd like to read or have just been curious about with Eli or any of us.  I'm already working on a post about Eli's feeding tube because that is something most people don't understand. 

I look forward to your questions and comments.  Again, thanks for reading and we hope each of you have a blessed 2013!!!

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