Thursday, January 22, 2015

CHD Awareness Week Petition

As you probably know, spreading awareness about Congenital Heart Defects is a passion for our family.  In all honesty, we didn't know much about them before Eli's diagnosis, so please don't feel guilty if you're the same way.  However, we now know so much and realize how important it is for the general public to know more about CHDs as well.  As the knowledge base grows, more people are more passionate about finding causes and cures, and that leads to more research, more treatment options, and a better life for these kiddos and their families. 

I don't have time right now to get into a lot of facts and figures, but CHDs affect many more people than I ever imagined.  It kills more children every year than all forms of childhood cancer do.  We all know how awful cancer is, CHDs are taking away more of our children than that nasty disease.  And those living with CHDs don't go into remission, they live with it every single day, every single minute, every single breath and heartbeat of their lives. 

Please help us out by clicking HERE to sign a petition.  The purpose of this petition to make Congenital Heart Defect Awareness Week recognized nationally from February 7-14 each year.  Right now, it's up to a few heart organizations, families, and individuals to promote the week.  It's never been anything official, but these kids and babies suffering from CHDs deserve to have a nationally recognized week.  To sign the petition, you simply go to the link provided above, enter your name, email address, and zip code.  To confirm you want to sign it, an email will be sent to you which you open and confirm.  It's easy and it means a lot to us.  Once you sign it, you also have the option of sharing it on your Facebook or Twitter account.  Please consider doing that as well, we are far from the required amount of signatures to make this happen.  Thank you for taking the time to do this!!!

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