As Sunday progressed, he was fussy and cranky. Some of it is just the fact that he's done with being here. Some of it is the fact that he hurts. His chest tube only drained about 70cc Saturday (just over 2 ounces), but Sunday he beat that on day shift alone. Dr. Kumar (cardiologist who was rounding this weekend) said we could think about taking the chest tube out when he had a couple consistent days of less than 40cc. We're not there yet. I'm sure it hurts Eli to have that fluid pushing on his lungs.
|A look at Eli's chest tube. I can't remember if I posted this before.|
In happier news, we had several visitors today. Bryan's Great Aunt Jean and Great Uncle Larry along with their grandson Max came to visit. Later in the day, Bryan's parents and sister brought Zachary to see us! As they were getting ready to leave, my sister came. It was nice to see non-medical adults again. It was especially nice to hold Zachary! He looked like he's grown in the past week! He was a little sad to leave, but he did very well and not too many tears.
While he was here, he stayed very busy. He showed us a new game Aunt Judy bought him, we took Eli for a wagon ride (Zachary pulled most of the two laps while Bryan pulled the oxygen tank), the boys each had a popsicle from the nurses station, and Zachary got to help me unload our clothes from the dryer.
|The Veale men|
|Popsicles from the nurses...Zachary was happy, Eli not so much.|
Eli was laboring and fussy after his wagon ride (second of the day) and his nurse didn't like his color too well. We gave him another dose of morphine which again did the trick for him. The night shift nurse turned his oxygen up from 0.25 liters to 0.5. It seems to be keeping him more steadily in the low to mid 90s barring any outbursts from Eli. Poor lil guy just can't get comfortable in bed anymore. He'll ask to sit up and then he'll cry and want to move. We'll move his position then he'll lay back down and fuss a little more. I can't imagine how he feels. Even more frustrating is that he can't really tell us when & where it hurts. We have to guess and I'm always afraid we're wrong.
|Holding Daddy's hand|
|He needed some comic relief after the morphine started helping him.|
Other than seeing Zachary and our other visitors, our highlight of the weekend was getting a refrigerator in our room. Yesterday morning I made a comment to our nurse that I felt like we were wasting milk and juice because Eli couldn't drink a whole carton at a time and it would sit out too long for him to be able to take it. She said she'd be right back and within a few minutes came pushing a mini-fridge into our room! Later she came with several juices and cartons of milk to stock us up for a while :) They're making it harder and harder for us to leave here... but leave we will when Eli is ready!
|Full of goodies!|
Here's a quick look at what our room looks like. It's a little messy given we had just entertained a total of eight other people throughout the day and done some laundry.
|Sink, nurse's work area, computer, IV pumps & feeding pump, crib.|
|The desk and chair where we post updates & blogs! Of course that's baseball on tv....every evening it's always baseball and/or basketball!|
|Our couch (pulls out into a bed. Comfort level? Not too shabby!) Our closet, but it's blocked by all the junk on the floor we couldn't fit into the closet. Tomorrow is definitely a "pack some crap out to the van" day.|
|Thank you to everyone who has mailed cards for our boys! Some even included Mommy & Daddy! It's so nice to see the messages people are including with their cards. Thank you so much for the encouragement and support!|
Specific Prayer Requests:
- that Eli continues to get stronger and experience less pain
- that his chest tube can come out soon (but obviously not until he's ready!)
- for Zachary to continue to be stronger than a five year old should have to be as he is shuffled among loving family members while Bryan and I are with Eli
- for things to be going well enough with Eli that Bryan can go back to Washington on Tuesday for Zachary's ball game & to spend the night with him
- for a fellow heart baby in Tennessee (Braxtyn) who is having a really rough time right now and was flown to Vanderbilt this evening because of some very serious complications. His parents have become very vocal CHD advocates
- for all the doctors, nurses, and therapists involved in Eli's case, that they continue to provide excellent care and see all the pieces of the puzzle that is Eli
That's not asking for much, is it? ;) Thanks again for reading and caring about Every Little Beat...